PERCEIVED STIGMA, FAMILY SUPPORT AND QUALITY OF LIFE AMONG CAREGIVERS OF FEMALE PATIENTS WITH SCHIZOPHRENIA DISORDER
Background: Family caregivers of persons with schizophrenia experience high level of poor quality of life be causes, Schizophrenia is severe mental illness which leads long term decline in person overall functional competence, alters communication patterns in the family, leads to occupational difficulties, and puts a load on the family caregivers. This study was done to examine how stigma and quality of life correlate with each other, and to determine impact of family support on quality of life of schizophrenia patients. Methods: Purposive sampling technique served sample recruitment of 200 caregivers of female patients with schizophrenia and correlational research design was used to analyse data. Devaluation of Consumer Family Scale, Perceived Social Support from the Family Scale, and WHO Quality of Life Scale were used as tools for data collection. Descriptive statistics, Pearson product moment co-relational analysis and hierarchal regression analysis were practiced for data analysis. Results: Significant negative relationship was found between perceive stigma and quality of life sub scales (Physical, Psychological and Environmental). Significant positive correlation between familial support and Quality of Life sub scales (Physical, Psychological and Environmental) was found among caregivers of women with schizophrenia. No significant differences were found between males and females with reference of quality of life. Conclusion: Stigma and quality of life are negatively associated while family support is positively associated with quality of life. Perceived stigma and family support were significant predictors of Quality of Life.
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Caqueo-Urízar A, Gutiérrez-Maldonado J. Burden of care in families of patients with schizophrenia. Qual Life Res 2006;15(4):719–24.
Chan SW. Global perspective of burden of family caregivers for persons with schizophrenia. Arch Psychiatr Nurs 2011;25(5):339–49.
Das K, Washdev W, Kazi AN, Jat MI, Siddiqi MN, ur Rehman R. Living with schizophrenia: A cross-sectional study to measure family care burden. Isra Med J 2019;11(1):20–3.
Ernst J, Mehnert A, Dietz A, Hornemann B, Esser P. Perceived stigmatization and its impact on quality of life-results from a large register-based study including breast, colon, prostate and lung cancer patients. BMC Cancer 2017;17(1):741.
Magana SM, Ramirez Garcia JI, Hernandez MG, Cortez R. Psychological distress among Latino family caregivers of adults with schizophrenia: The roles of burden and stigma. Psychiatr Serv 2007;58(3):378–84.
Gupta S, Isherwood G, Jones K, Van Impe K. Assessing health status in informal schizophrenia caregivers compared with health status in non-caregivers and caregivers of other conditions. BMC Psychiatry 2015;15:162.
Imran N, Bhatti MR, Haider II, Azhar L, Omar A, Sattar A. Caring for the caregivers: Mental health, family burden and quality of life of caregivers of patients with mental illness. J Pak Psychiatr Soc 2010;7(1):23–8.
Hanley B, Tasse MJ, Aman MG, Pace P. Psychometric properties of the family support scale with head start families. J Child Fam Stud 1998;7(1):69–77.
Chesla CA. Do family interventions improve health? J Fam Nurs 2010;16(4):355–77.
Mayberry LS, Osborn CY. Family support, medication adherence, and glycemic control among adults with type 2 diabetes. Diabetes Care 2012;35(6):1239–45.
Bernstein ME, Barta L. What do parents want in parent education? Am Ann Deaf 1988;133(3):235–46.
Pelchat D, Bisson J, Ricard N, Perreault M, Bouchard JM. Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability. Int J Nurs Stud 1999;36(6):465–77.
Struening EL, Perlick DA, Link BG, Hellman F, Herman D, Sirey JA. Stigma as a barrier to recovery: The extent to which caregivers believe most people devalue consumers and their families. Psychiatr Serv 2001;52(12):1633–8.
Procidano ME, Heller K. Measures of perceived social support from friends and from family: Three validation studies. Am J Community Psychol 1983;11(1):1–24.
The WHOQOL Group. WHOQOL-BREF. Field Trial Version. Program on Mental Health. Geneva: World Health Organization; 1996.
Thara R, Srinivasan TN. How stigmatising is schizophrenia in India? Int J Soc Psychiatry 2000;46(2):135–41.
Yin Y, Zhang W, Hu Z, Jia F, Li Y, Xu H, et al. Experiences of stigma and discrimination among caregivers of persons with schizophrenia in China: a field survey. PLoS One 2014;9(9):e108527.
Kate N, Grover S, Kulhara P, Nehra R. Relationship of caregiver burden with coping strategies, social support, psychological morbidity, and quality of life in the caregivers of schizophrenia. Asian J Psychiatry 2013;6(5):380–8.
Sharma N, Chakrabarti S, Grover S. Gender differences in caregiving among family-caregivers of people with mental illnesses. World J Psychiatry 2016;6(1):7–17.
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